In addition to academics and clinicians from diverse backgrounds, the Health Experience Team includes people living with Multiple Sclerosis (MS) and Type 1 Diabetes (T1D). This enables us to harness their expertise and ensure that their experiences and preferences are embedded in the research from design, through data collection, analysis, and implementation. We refer to them as our 'research partners'.
To date, our research partners have brought enormous value to our team and OHIOH. Amongst other things they have:
Taught us about living with MS and T1D, and the challenges this brings, including work, school and family life;
Introduced us to other people living with MS and T1D;
Informed our study design, particularly the relevance of specific questions and methods of data collection