We are a team of researchers at the Australian National University (ANU) working to improve the health and wellbeing of people living in the ACT and nearby regions who have been diagnosed with multiple sclerosis (MS). We are seeking people aged 18 years or older in two groups: those who have been diagnosed with MS, and also people who have never been diagnosed with MS (perhaps family and/or friends of people with MS). The two groups of people will form the ACT MS Cohort Study.
The ACT MS Cohort Study will follow people over time to monitor changes in health and wellbeing. We are recruiting people with and without MS so that we can see what changes occur as a result of just getting older, and what changes are more closely linked to having MS.
What will I need to do if I take part in the study?
If you might be interested in taking part in the ACT MS Cohort Study, we will first provide you with more information about the study, answer any questions that you have, and ask you to sign a consent form. The study aims to collect information about you once every year. At the first interview, we will ask you questions about yourself (such as your age, where you were born, your education and work history, and so on), and your past health. At this interview, and the following annual visits, we will ask questions about your current health and lifestyle (e.g., diet), take measurements of your height, weight and blood pressure, and take a blood sample. If you are a person who has been diagnosed with MS, we will ask you to let us know if you experience a relapse.
If you would like more information about this study, please read the participant information sheet or contact:
Contact: Dr Jo Lane on 02 6125 1485
or email: firstname.lastname@example.org
This study has been approved by the ANU and ACT Health Human Research Ethics Committees (Protocols 2020/047 and ETH.2019.00081).