The Australian National University

 

Our Health in Our Hands

ANU Grand Challenge

 

September 2019, Edition 2

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Introducing the Health Experience Team

In addition to academics and clinicians from diverse backgrounds, the Health Experience Team includes people living with Multiple Sclerosis (MS) and Type 1 Diabetes (T1D). This enables us to harness their expertise and ensure that their experiences and preferences are embedded in the research from design, through data collection, analysis, and implementation. We refer to them as our ‘research partners’.

To date, our research partners have brought enormous value to our team and OHIOH. Amongst other things they have:

  • Taught us about living with MS and T1D, and the challenges this brings, including work, school and family life;
  • Introduced us to other people living with MS and T1D;
  • Informed our study design, particularly the relevance of specific questions and methods of data collection,
  • All of our work is informed by and founded on people’s experiences of living with MS and T1D. Our first step is an examination of what the peer-reviewed literature can tell us about this, and from there we are actively working with people to update this understanding and build it into our research.

    The Health Experience Multiple Sclerosis Team

     

    The Health Experience Type 1 Diabetes Team

     

     

    Virtual research partners

     

    We are working with people living with MS and Type 1 Diabetes in and around the ACT, exploring ideas about the collection and sharing of health information - the values, concerns and sense of opportunity people have about this.

    We have been conducting workshops to explore the domains of misunderstanding between researchers and people living with MS. Through identifying differences in the way that scientists and people living with MS conceptualise problems, manage dissenting opinions, and understand the final point of research, we aim to develop and implement a set of reflective tools to support our collaborative research. This work is being funded through an Innovation Grant from MS Research Australia.

    Our Health Experience Diabetes Team has been working with ANU College of Engineering and Computer Science TechLauncher researchers and students exploring the potential of future monitoring devices.

    MS Focus Group Data Analysis Workshop

    RESEARCH UPDATES

     

    Big Data Research

    As the world revolves increasingly around big data and data privacy, OHIOH finds itself at the core of this orbit with the prospective of managing large volumes of clinical and genetic data from people living with diabetes and multiple sclerosis. Its big data program is bridging patients, clinicians, and the three other multi-disciplinary OHIOH programs. Read more»

     

     

    Sensors Research

    The OHIOH sensors team is an interdisciplinary and collaborative team spanning ANU research groups in Chemistry, Engineering, and Physics, where inputs from the respective MS and Diabetes cohorts will be used to develop highly sensitive and selective sensors that detect relevant biomarkers. This cross collaboration allows for scientific techniques and equipment from vastly different fields, including optical, electrochemical, and biochemical sensing. Read more»

     

    Engagement

     

    Conferences

    ACT MS Symposium 2019

    29 October. Registration via Eventbrite.

    Medical Machine Learning

    A/Prof Hanna Suominen to present an invited talk, ANU CECS Dean’s monthly seminar - 30 October

    Dr Jo Lane is presenting at the MS Limited Taking Control Group on Saturday 14 September 2-4pm on "The Compassionate Mind" that focuses on achieving balance between brain systems (thrive, drive and soothing systems).

    The 8th Annual NHMRC Symposium on Research Translation: 20-21 November A/Prof Hanna Suominen to present a poster, titled "Innovative Machine Intelligence and Cybersecurity Solutions to Safeguard the Patient Information Associated with a New Generation of Medical Devices"

    Teaching

    A/Prof Hanna Suominen will deliver a guest lecture, called “Co-designing and Developing Machine Intelligence and Cybersecurity Solutions in the ANU Our Health in Our Hands Grand Challenge”, at the Autonomy, Agency and Assurance (3Ai) institute in the ANU College of Engineering and Computer Science (CECS) (17 September, Canberra)

    A/Prof Hanna Suominen will deliver a guest lecture, called “Health Document Analysis”, at the ANU Research School of Computer Science, CECS, ANU (24 September, Canberra)

     

     

    Student Engagement

    Nearly 300 Bachelors and Masters students from ANU College of Engineering and Computer Science (CECS) and College of Business and Economics (CBE) delivered an OHIOH research-led assignment for the Networked Information Systems unit by the Research School of Computer Science in Semester 1, 2019. Read more»

     

    ACT Multiple Sclerosis Symposium – October 2019

     

    The ACT MS Symposium 2019 will be held on 29 Oct at the John Curtin School of Medical Research, ANU. This free public event will focus on personalised and integrated management of MS. We are pleased to announce that we have secured an international keynote speaker on that topic.

    » Register here

     

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