MS Research Toolkit
Our “Toolkit for collaboration between people living with MS and researchers” is due to be launched on 15 June. The toolkit was designed by, and for, people living with MS and researchers. It is a collection of materials to help people living with MS and researchers to understand each other and work well together.
Whether you are a person living with MS, or a person researching MS, the toolkit is designed to help you understand the perspectives of your collaborators, to work together effectively.
You can find more details here: http://anu.edu.au/MSToolkit
2019 Ian Ballard Travel Award from MS Research Australia
Dr Jo Lane was awarded the 2019 Ian Ballard Travel Award from MS Research Australia (19-0760). As part of this award she attended the Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS) Forum 2020 in West Palm Beach, Florida where the theme of the Forum was “Networks in Multiple Sclerosis”.
Dr Lane also spent a week at the Multiple Sclerosis Precision Medicine Center of Excellence, Johns Hopkins University and presented at the NeuroImmunology Seminar series on “Our Health in Our Hands: improving personalised care in multiple sclerosis”. She was mentored by Associate Professor Ellen Mowry and conducted an Observership with neurologists at Johns Hopkins.
Dr Lane was mentored by Professor Helen Tremlett and her team at the Djavad Mowafaghian Centre for Brain Health, Faculty of Medicine (Neurology), University of British Columbia (UBC). She presented at the UBC MS Connect Session on “Improving personalised care in multiple sclerosis”.
Dr Lane received positive feedback regarding the ANU’s Our Health in Our Hands Project following her presentations and future collaborations were discussed. She is thankful to MS Research Australia for providing this opportunity to engage with and be a part of the international MS research community.
The ARC Centre of Excellence for Transformative Meta-Optical Systems
The centre will help develop smaller, smarter, faster and cheaper wearable optical sensors to better monitor our health in real-time. Read more>>
Personalised and Integrated Management of MS
The 3rd ACT Multiple Sclerosis Symposium was held on the 29th October 2019, at the John Curtin School of Medical Research, ANU.
The program featured researchers and clinicians from overseas, interstate and the researchers from ANU who are working on the “Our Health in Our Hands” MS research. 70 participants attended, including a large number of People with Multiple Sclerosis (PwMS), who enjoyed hearing the presentations but more importantly, being able to meet and talk to clinicians and researchers. This year, students presented posters of the work being undertaken by them. There were 11 posters and 3 device displays and the students were available to discuss their research.
We were very privileged to hear from Associate Professor Ellen Mowry, from Johns Hopkins University, Baltimore USA, who spoke on Personalising the approach to multiple sclerosis through “learning health system”. Professor Mowry discussed MS Paths (Partners advancing technology and health solutions) which is seeking to enhance MS Care. Other areas of MS research included Clinical Phenotyping, Bio banking for Genetic research, Retinal Imaging, Patient reported outcomes and wearable measures of disability.
Dr Patrick Aouad gave a presentation on Understanding, diagnosing and managing MS in 2019 and beyond. This was followed by a panel discussion, which included two PwMS, who talked about their journeys with MS, Professor Mowry, Professor Robyn Lucas (ANU), Dr Aouad, Dr Julia Morahan from MS Research Australia, Jeff Lawrence MSL and moderated by Professor Christian Lueck.
Dr Vanessa Fanning is the Australian non-clinical representative on the Alliance, she reported on work being undertaken by the International Progressive MS Research Alliance.
Researchers from the OHIOH team reported on the promising progress of the work undertaken to date.
It was encouraging to see people with MS actively involved in the Symposium. ANU is to be commended for hosting these Symposia which are gaining in strength and respect each year.
Katrina Chisholm (PwMS)
New sensors open door to wearable medical diagnostic device
Scientists from ANU have designed tiny optical sensors that open the door to developing a wearable device that allows doctors to medically diagnose people's health in real time.