Community
In addition to academics and clinicians from diverse backgrounds, the Health Experience Team includes people living with Multiple Sclerosis (MS) and Type 1 Diabetes (T1D). This enables us to harness their expertise and ensure that their experiences and preferences are embedded in the research from design, through data collection, analysis, and implementation. We refer to them as our 'research partners'.
To date, our research partners have brought enormous value to our team and OHIOH. Amongst other things they have:
- Taught us about living with MS and T1D, and the challenges this brings, including work, school and family life;
- Introduced us to other people living with MS and T1D;
- Informed our study design, particularly the relevance of specific questions and methods of data collection
Health Experience Type 1 Diabetes Team
Back: Mr Lachlan Pedley, Prof Chris Nolan, Ms Karen Brown, Ms Kristine Wright
Front: Ms Madhur Chhabra, Dr Anne Parkinson, Ms Ellen Brown, Ms Liz Pedley, Dr Jane Desborugh
Health Experience Multiple Sclerosis Team
Back: Dr Anne Parkinson, Ms Danielle Squire, Ms Helena Paul, Mr Jack Leayr, A/Prof Christine Phillips, Dr Vanessa Fanning, Ms Janet Drew
Front: Dr Anne Bruestle, A/Prof Hanna Suominen, Dr Jane Desborough, Ms Katrina Chisholm.
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